"Nothing is so strong as Gentleness; nothing so gentle as real strength." 

- Francois de Sales 


Our BPAN journey has led us to find the beauty in all things. As devastating as the diagnosis was, over time I was glad we found out and it led us to the BPAN Community. We get our strength, courage, support and more from seeing all our kids triumph. Whether small or big, we are in it together. We have found Beautiful people on the same journey. We share our struggles, our vulnerability in the raw emotions we feel through the ups and down.






I had never been closely associated with anyone with an intellectual disability before my daughter was diagnosed with BPAN. She has taught me to be compassionate to all people, but especially those with disabilities. They aren't intimidating anymore. They are beautiful people who fight to live every day. We should honor them and imitate their grace.




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- Maria A.
Milton, Ontario
- Amy Stamps, Topeka, KS


Being able to acknowledge, but look past, what you know the future holds in store for both you and your child and, instead of living your life in dread of it, you embrace today and all the joy these children bring to our lives.

- Dusty J.
Tacoma, WA 


We keep going everyday. No matter what we faced the day before.

- Danielle C.
Cottonwood, AZ


Having a 4 year old daughter with BPAN has allowed our family to see the goodness and light in any situation. We now continually ask ourselves, Are we being honest with ourselves about how we are living our life? Are we being dependable and trustworthy? We must live each day fully and whole heartedly and stay in the moment, for we do not know what the future holds.

- Amber D.
Houston, TX


"Each day, I am learning to surrender and accept my limitations. I am a mother, an advocate, an educator, and so much more, however on a daily basis I must remember, first and foremost, I am a human being."

- Sarah C.
Boca Raton, FL