FIRST GIVING - WE CAN FOR BPAN FUNDRAISING CAMPAIGN BENEFITTING THE NBIA DISORDERS ASSOCIATION

Through the tireless efforts of BPAN Warrior families and their local communities, the "WE CAN FOR BPAN" First Giving Campaign, has successfully raised over $200,000. The funds raised will help support ongoing research and help provide support to families and patients living with BPAN.

Learn more about how you can create your own First Giving Page to Support  "We Can for BPAN" 

UPENN MILLION DOLLAR BIKE RIDE

The Penn Medicine Orphan Disease Center (ODC) will host the 4th Annual Million Dollar Bike Ride (MDBR) on Saturday, May 20th, 2018 to raise money for rare disease research. The ODC ensures that 100% of the funds raised goes towards these pilot grants, with no overhead taken out. With matching funds provided by ODC, BPAN families managed to raise over $101,000 for BPAN research at the 2017 MDBR. The 2018 MDBR Grants in BPAN were recently awarded to: Penelope Hogarth, MD, Oregon Health & Science University

and Hong Zhang, PhD, University of Massachusetts Medical School. 

Let's make 2018 MDBR just as successful! Ride with us in 2018.

  

SHOP AT AMAZON?

AmazonSmile is a simple and automatic way for you to support BPAN Warriors, every time you shop, at no cost to you. When you shop at AmazonSmile, Amazon will donate to BPAN Warriors when you use this link and select them as the charity of your choice. Support us every time you shop.

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