RARE DISEASE DAY

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THANKS FOR BEING A PART OF OUR STORY

World RARE Disease Day is held annually on the last day of February to raise awareness of the over 7,000 rare diseases that have currently been identified. Through continued research, improved awareness, access to resources and ongoing education, we carry the hope that all people who live with a rare disease may have improved quality of life.

WEAR | SNAP | POST | SHARE - A BPAN commUNITY RARE DISEASE DAY CAMPAIGN

See how families around the country rallied behind their BPAN Warriors and were supported by their local commUNITY members this past RARE DISEASE DAY. With a simple tattoo campaign, local commUNITIES came out to show support for our BPAN Warrior families. Enjoy the incredible photos which were shared on social media.

BPAN LEMONADE STAND - TAKE A STAND AND JOIN OUR WARRIOR COMMUNITY

What's sweeter than a BPAN smile? Sweet old-fashioned lemonade and sweet treats, all donated to support a great cause! Join local mini-Warriors with a great big voice as they volunteer their time and talents to support our BPAN Warriors this upcoming February 24, 2018.

 

TAKE A STAND - BPAN LEMONADE STAND

ONE BREATH, ONE MOVEMENT, ONE COMMUNITY - BE THE WARRIOR THROUGH YOGA

RARE DISEASE DAY 2018: Are you a Warrior? Join our TRIBE and support our BPAN Warrior commUNITY. Help us increase BPAN awareness and provide support to individuals and families affected by BPAN. Join our local BPAN Yoga commUNITY in support of BPAN Warriors, as we celebrate Rare Disease Day by connecting with one another, through breath and movement. With the strength of a Warrior, we stand together.

 

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