When our daughter was a baby 35 years ago we were told "Walk away and forget it. Because she'll never walk, she'll never talk, she'll never be toilet trained."
This was devastating.
But perseverance paid off.
Amy never learnt to talk, but despite what was said about her limitations, she did learn to feed herself and to walk. Now all of Amy's hard fought gains are being lost. She can no longer walk, she can no longer feed herself and she suffers from painful muscle spasms.
She worked so hard. We pushed her. She did what she could and now she's just losing it ... it's slow and insidious, there is no stopping it. While that is confronting, the lessons from Amy's life are not ones of struggle, but rather ones of blessing.
Amy enriches our lives and those of the family. We are so proud of her and what she has managed to achieve.
She is very easy to love.