RARE DISEASE DAY

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C.A.R.E.

for RARE initiative

World RARE Disease Day is held annually on the last day of February to raise awareness of the over 7,000 rare diseases that have currently been identified. Through continued research, improved awareness, access to resources and ongoing education, we carry the hope that all people who live with a rare disease may have improved quality of life.

TAKE A LOOK AT SOME OF OUR CAMPAIGNS LAST WORLD RARE DISEASE DAY 2018

JOIN BPAN WARRIORS ON WORLD RARE DISEASE DAY 2019 AND SHOW THAT

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WEAR | SNAP | POST | SHARE - A BPAN commUNITY RARE DISEASE DAY CAMPAIGN

See how families around the country rallied behind their BPAN Warriors and were supported by their local commUNITY members this past RARE DISEASE DAY. With a simple tattoo campaign, local commUNITIES came out to show support for our BPAN Warrior families. Enjoy the incredible photos which were shared on social media.

GLOBAL GENES ON WORLD RARE DISEASE DAY - BPAN commUNITY PHOTOS

The 11th annual World RARE Disease Day will be held on Wednesday, February 28, 2018! On this day, various activities take place all over the United States as well as countless locations around the world.

 

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THE THEME FOR RARE DISEASE DAY IS RESEARCH

Rare Disease Day 2018 offers participants the opportunity to be part of a global call on policy makers, researchers, companies and healthcare professionals to increasingly and more effectively involve patients in rare disease research.

GET INVOLVED TODAY

ONE BREATH, ONE MOVEMENT, ONE COMMUNITY - BE THE WARRIOR THROUGH YOGA

Are you a Warrior? Join our TRIBE and support our BPAN Warrior commUNITY. Help us increase BPAN awareness and provide support to individuals and families affected by BPAN. Join our local BPAN Yoga commUNITY in support of BPAN Warriors, as we celebrate Rare Disease Day by connecting with one another, through breath and movement. With the strength of a Warrior, we stand together.

 

BE A YOGA WARRIOR

BPAN LEMONADE STAND - TAKE A STAND AND JOIN OUR WARRIOR COMMUNITY

What's sweeter than a BPAN smile? Sweet old-fashioned lemonade and sweet treats, all donated to support a great cause! Join local mini-Warriors with a great big voice as they volunteer their time and talents to support our BPAN Warriors this upcoming February 24, 2018.

 

TAKE A STAND - BPAN LEMONADE STAND

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