CIITIZEN: NEXT GENERATION BPAN NATURAL HISTORY STUDY
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How it works
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No clinic visits required
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Clinical data will be collected from patient’s health records, organized and summarized, free of charge
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Caregivers retain full control of patient’s health records
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With your consent, clinicians, researchers and biopharma can access anonymized data to aid in research
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Available now in the US with plans for worldwide availability
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Onboarding to the Ciitizen platform requires less than 10 minutes of caregiver time
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Why Natural History Studies Matter
Natural History Studies (NHS) are critical to the drug development process. Ciitizen has developed a new method to make this process easier. A next generation, digital NHS for BPAN disorder is expected to facilitate:
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Informing clinical researchers how a disease changes over time
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Enabling better endpoint selection to use in clinical trials
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The connection between mutation types and symptoms to facilitate targeted therapies
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Reducing the time it takes to study new medicines in clinical trials
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Speeding up the time to get therapeutics to patients
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The use of data as a placebo (instead of actual patients) in a clinical trial
Become a Ciitizen and help advance research and accelerate treatments. Please join us.
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