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CIITIZEN: NEXT GENERATION BPAN NATURAL HISTORY STUDY
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How it works

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  • No clinic visits required

  • Clinical data will be collected from patient’s health records, organized and summarized, free of charge

  • Caregivers retain full control of patient’s health records

  • With your consent, clinicians, researchers and biopharma can access anonymized data to aid in research

  • Available now in the US with plans for worldwide availability

  • Onboarding to the Ciitizen platform requires less than 10 minutes of caregiver time

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Why Natural History Studies Matter

 

Natural History Studies (NHS) are critical to the drug development process. Ciitizen has developed a new method to make this process easier. A next generation, digital NHS for BPAN disorder is expected to facilitate:

  • Informing clinical researchers how a disease changes over time

  • Enabling better endpoint selection to use in clinical trials

  • The connection between mutation types and symptoms to facilitate targeted therapies

  • Reducing the time it takes to study new medicines in clinical trials

  • Speeding up the time to get therapeutics to patients

  • The use of data as a placebo (instead of actual patients) in a clinical trial

Become a Ciitizen and help advance research and accelerate treatments. Please join us.

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https://www.ciitizen.com/bpan

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