BPANWARRIORSJun 18, 20211 minUnderstanding the decision-making process around RNS, VNS, and DBSJoin our network of patient advocacy groups who are part of our collaborative network that serves children with rare and catastrophic...
BPWMay 1, 20211 minUsing Technology to Increase Access to Rare Disease ResearchUsing Technology to Increase Access to Rare Disease Research
BPANWARRIORSFeb 26, 20211 minBPAN WARRIORS | RARE COURAGEBPAN HERO: ALANNA MABEY NOMINATED BY: Jamii Stock "Selfless, Generous Compassionate" Alanna provides support to our large, dynamic...
BPANWARRIORSFeb 22, 20212 minBPAN WARRIORS | RARE COURAGEBPAN HERO: MIET NEETESONNE NOMINATED BY: Andy Verhaegen, Husband "Strong, Caring, Sweet" There are a million reasons why Miet is my...