Join our network of patient advocacy groups who are part of our collaborative network that serves children with rare and catastrophic...

Using Technology to Increase Access to Rare Disease Research

BPAN HERO: ALANNA MABEY NOMINATED BY: Jamii Stock "Selfless, Generous Compassionate" Alanna provides support to our large, dynamic...

BPAN HERO: MIET NEETESONNE NOMINATED BY: Andy Verhaegen, Husband "Strong, Caring, Sweet" There are a million reasons why Miet is my...