BPANWARRIORSJun 18, 20211 minUnderstanding the decision-making process around RNS, VNS, and DBSJoin our network of patient advocacy groups who are part of our collaborative network that serves children with rare and catastrophic...
BPWMay 1, 20211 minUsing Technology to Increase Access to Rare Disease ResearchUsing Technology to Increase Access to Rare Disease Research
sarah6441Jul 3, 20194 min"BPAN - Beta-propeller Protein-associated Neurodegeneration - what a mouthful"Like the many doctors, therapists, child psychologist and specialists including two pediatric geneticists and two pediatric neurologists,...
