Patient Advocacy

Understanding the decision-making process around RNS, VNS, and DBS

Join our network of patient advocacy groups who are part of our collaborative network that serves children with rare and catastrophic...

"BPAN - Beta-propeller Protein-associated Neurodegeneration - what a mouthful"

Like the many doctors, therapists, child psychologist and specialists including two pediatric geneticists and two pediatric neurologists,...