The parent-led research foundation, BPAN Warriors, announced today the launch of their groundbreaking BPAN Digital Natural History Study (NHS) in partnership with Ciitizen. The new BPAN NHS aims to break down the barriers to patient participation and accessibility in the current natural history study model, while accelerating rare disease drug development.
"In a disease as complex as BPAN, accessing whole-health records allows us to see the entire story. Ciitizen provides us with the ability to rapidly assimilate and analyze 1000’s of points of data, across a large cohort of BPAN patients"
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