In preparation for World Rare Disease 2021, February 28, 2021, founder of BPAN Warriors, Sarah Chisholm put together a brief video of her daughter Eva "Magoo", who was diagnosed with BPAN in 2017. Eva has and continues to serve as Sarah's inspiration for the work that she continues to do daily on behalf of BPAN Warriors.
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Oh, I just love this video so much, and your beautiful family. Thank you for all that you do for the rare-disease community.
-S.O