caregiving | BPAN WARRIORS

BPAN WARRIORS | RARE COURAGE

BPAN HERO: MIET NEETESONNE NOMINATED BY: Andy Verhaegen, Husband "Strong, Caring, Sweet" There are a million reasons why Miet is my...

BPAN WARRIORS | RARE COURAGE

BPAN HERO: MIKE BUI NOMINATED BY: Tram Thai, Wife "Super-duper Dad!" Mike took care of Nhi - our daughter, a Bpanner, for 6 months,...

BPAN WARRIORS | RARE COURAGE

BPAN HERO: ANETTE FITCH NEDDO NOMINATED BY: Sherry "Strong, Loving, Resilient" Anette is the mother of a beautiful girl with BPAN....

BPAN WARRIORS | RARE COURAGE

FOR ALL THE BIG AND LITTLE THINGS THAT OUR RARE DISEASE COMMUNITY DOES ON A DAILY BASIS - WE HONOR YOU! In the week leading up to World...

ANGEL AID: "Voice of the Mother" Mission Video

While the rare diseases may be different, the shared, lived experience is universal. For anyone who missed the world premiere of the...

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