BPANWARRIORSFeb 22, 20212 minBPAN WARRIORS | RARE COURAGEBPAN HERO: MIET NEETESONNE NOMINATED BY: Andy Verhaegen, Husband "Strong, Caring, Sweet" There are a million reasons why Miet is my...
BPANWARRIORSFeb 22, 20211 minBPAN WARRIORS | RARE COURAGEBPAN HERO: FINLEY NOMINATED BY: Beckie (Mom) "Considerate, Patient, Fierce" Finley is 8 years old. He is the most amazing, loving and...
BPANWARRIORSFeb 22, 20211 minBPAN WARRIORS | RARE COURAGEBPAN HERO: MIKE BUI NOMINATED BY: Tram Thai, Wife "Super-duper Dad!" Mike took care of Nhi - our daughter, a Bpanner, for 6 months,...
BPANWARRIORSFeb 22, 20211 minBPAN WARRIORS | RARE COURAGEBPAN HERO: ANETTE FITCH NEDDO NOMINATED BY: Sherry "Strong, Loving, Resilient" Anette is the mother of a beautiful girl with BPAN....
sarah6441Jan 17, 20212 minCOLLECTION OF BPAN PATIENT CASE STUDIES REPORTED IN PUBLISHED LITERATUREFROM OUR PARTNERS AT GENOMENON: Providing Rare Patients, Clinicians and Researchers Alike, A Powerful Tool to Learn More About BPAN What...