BPANWARRIORSFeb 22, 20212 minBPAN WARRIORS | RARE COURAGEBPAN HERO: MIET NEETESONNE NOMINATED BY: Andy Verhaegen, Husband "Strong, Caring, Sweet" There are a million reasons why Miet is my...
BPANWARRIORSFeb 22, 20211 minBPAN WARRIORS | RARE COURAGEBPAN HERO: FINLEY NOMINATED BY: Beckie (Mom) "Considerate, Patient, Fierce" Finley is 8 years old. He is the most amazing, loving and...
BPANWARRIORSFeb 22, 20211 minBPAN WARRIORS | RARE COURAGEBPAN HERO: MIKE BUI NOMINATED BY: Tram Thai, Wife "Super-duper Dad!" Mike took care of Nhi - our daughter, a Bpanner, for 6 months,...
BPANWARRIORSFeb 21, 20211 minBPAN WARRIORS | RARE COURAGEFOR ALL THE BIG AND LITTLE THINGS THAT OUR RARE DISEASE COMMUNITY DOES ON A DAILY BASIS - WE HONOR YOU! In the week leading up to World...
sarah6441Oct 16, 20202 minSanford CoRDS Great Plains Rare Disease Day Summit 2020The 2020 Sanford CoRDS Great Plains Rare Disease Day Summit went virtual this year with a focus on technologies and clinical tools for thera